Tag: FTD

Spring update Barry seems to be holding his own these days. He used to spend a lot of time in bed, which was a way to keep him from wandering around his floor and getting into trouble. For a long …

BARRY’S JOURNEY No. 28 Read More »

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What is Barry thinking? I can’t figure out how to feel about Barry and his life at the care center. When he first got there, I was relieved that he had somewhere to go after being kicked out of his …

BARRY’S 8OURNEY No. 27 Read More »

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 Carlos State Park Last summer I went up to Alexandria, Minn., to stay with my new friend Deb, who took one of my Saturday classes a few years back at the College of Visual Arts (CVA). Deb was on a …

HIKE FORTY Read More »

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I was pushing buttons on my phone a few months ago, trying to get to the calculator, when suddenly my phone started playing Ben Harper’s song, In the Colors. I stopped and listened as Ben sang, “come dance with me …

OUR JOURNEY – Dance with Me Read More »

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Willow River State Park Willow River State Park was the best hike of last summer. My friend Jeanne was in town to prepare her parents’ house for an estate sale. Sadly she lost both parents within six months of each …

HIKE THIRTY-NINE Read More »

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Be careful what you wish for Something has been really bothering me lately. As I look back on my marriage to Barry, I can say that we rarely fought. When we worked together with Barry as the manager of my …

MY JOURNEY Read More »

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It has been a while since my last post, and I am sorry to have kept everyone hanging. It seems I no longer have a firm hold on time while I juggle so many projects that I never get anything …

BARRY’S JOURNEY No. 27 Read More »

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A few weeks ago there was article about me in the Star and Tribune written by reporter Kevyn Burger. It was about the journey Barry and I are on with his frontotemporal dementia (FTD), our family and my work. It …

Thank you! Thank you! Read More »

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Peace and comfort in hospice care A few weeks ago, I attended a care conference with a social worker and a nurse at Barry’s care center. Everyone was concerned about his weight loss, falling and food pocketing. Barry had been …

BARRY’S JOURNEY No. 26 Read More »

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Falling and rocking Barry is getting really unsteady on his feet since his doctors cut down on his medications. I can’t help but wonder if we now are seeing the true symptoms of frontotemporal dementia (FTD) that the medications may …

BARRY’S JOURNEY No. 25 Read More »

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