Should I sit by his bed until he dies? Today I got a call from the care center where Barry lies in bed day after day. The nurse only calls when something is wrong. I am up north staying at …

MY JOURNEY – September 2016 Read More »

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Being Happy I can’t get over some of the twists and turns that have occurred along this journey with my husband Barry and his FTD. I am no longer surprised when “serendipity” suddenly appears out of the blue. I remember …

MY JOURNEY – August 2016 Read More »

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Elusive memories of our meeting, August Today as I hiked higher and higher on the Superior Hiking Trail, another memory popped into my mind. This is what I find so interesting about hiking: the brain brings up things when you …

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Call from Hospice, July I am up north hiking once again, trying hard, as a party of one, to hike the complete Superior Hiking Trail, which is rated as one of the top ten hiking trails in the country. My …

SUPERIOR HIKING TRAIL, SUMMER 2016 Read More »

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Working Anywhere I am up north writing this because I really need some uninterrupted time to concentrate on turning my blog into a memoir. I have this week off between teaching classes and some speaking engagements this summer, so I …

MY JOURNEY – July 2016 Read More »

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Feeding Barry, June 2016 A few weeks ago, I met with the hospice workers and two staff members at Barry’s care center. I wanted to tell them that Barry should no longer be fed. No one should have to live …

Barry’s Journey Read More »

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For years I have heard the term “living in the present” and never really thought much about it. It sounded a bit New Age to me and I didn’t care much to find out what it exactly means “to be …

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Barry nears death, May 2016 Yesterday when the nurse and I got Barry out of bed to adjust his twisted sheets, I was stunned to see how thin and weak he has become. The panicky look on his face as …

OUR JOURNEY – May 2016 Read More »

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More early signs The other day when I purchased a health drink made with acai berry, I remembered a very desperate time for us. Some memories of years ago are so clear, yet today I can walk into a room …

OUR JOURNEY – Money for nothing Read More »

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Where does humor and laughter fit into this crazy illness called FTD? As my father was dying in March 2016, I teased him up until the very end. We had a running joke that I inherited some things from him …

Our Journey – Laughter… Read More »

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