Tag: frontotemporal dementia

MY KIDS’ DAD My kids have a dad in a nursing home who is sometimes embarrassingly filthy when they come to visit. Sometimes he is wearing clothes that do not belong to him. Sometimes he says f*** you to them …

BARRY’S JOURNEY No. 21 Read More »

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From hospital to hospital to where now? A person with frontotemporal dementia (FTD) is not someone you want to be around. Hanging out with Barry can sometimes be a very unpleasant experience. I am learning that caring for Barry as …

BARRY’S JOURNEY No. 15 Read More »

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The Hike – Overnight with friends Our good friends are Peter and Maureen Beck. Over the years, we have had many good times together. When our kids were babies, we started a tradition of spending New Year’s Eve together. Some …

HIKE NUMBER TWENTY THREE Read More »

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Suddenly to the hospital As I write this in April, I look back to January when I made the decision to move Barry into an assisted living facility. I thought it would be a breeze, and he would be safe …

BARRY’S JOURNEY No. 12 Read More »

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Full time at the club It took me a long time to figure out the system. I still have a lot to learn, but I’m finding my way along this journey with Barry. When Barry was first diagnosed, I was …

BARRY’S JOURNEY No. 8 Read More »

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Hanging out with Ed. Barry has a pal who takes him out to lunch every Wednesday. We met Ed and his family when our boys ski-raced with his son. When Ed learned about Barry’s frontotemporal dementia (FTD) and our financial …

BARRY’S JOURNEY No. 7 Read More »

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